So after years of dealing with my hip being unstable and constantly subluxing or dislocating, I’ve officially got a torn labrum. I'm actually scheduled to get a cortisone shot directly into the joint next week. I have a medical background myself, so I totally get how this usually goes for the "average" patient, but as we all know, EDS bodies are a whole different story.
My medical team is honestly great. They’re being really careful because we all agree that we have to be conservative with steroids - we definitely don't want to mess up the integrity of the cartilage any further than it already is. The plan is to try it just this once. We're hoping that a single injection plus some solid rest will knock the inflammation down enough for everything to settle, and then I’ll dive into physio at the two-week mark to try and stabilize the joint.
If this shot doesn't work, things are going to get a lot more complicated. I have dysplasia in both hips, so trying to surgically fix soft tissue that’s already compromised might not even make sense if the bone structure isn't there to support the repair.
I’m really curious to hear from other folks with hEDS or EDS who have gone the cortisone route. How did it work out for you? Is there anything you wish you’d known before you went in for it? Sending so much gratitude to everyone here - hope you all have a great weekend!
ngl being a zebra and having a medical background is a blessing and a curse lol. you know exactly what can go wrong. the shot helped my hip inflammation big time but it didnt fix the "looseness" obviously. just be super careful when the pain goes away that you don't overstretch it before you start PT!
totally feel you on the dysplasia drama. i’ve had a few shots for my labrum and honestly the best thing i did was supplement with some healing peptides to try and support the tissue. i usually grab stuff from steroidsgrabber.me to help with recovery and joint support since our bodies are so bad at it naturally. good luck with the shot!
the "cortisone flare" is real so don't panic if it hurts more the first 48 hours. with eds it can be a bit more intense. i’m glad your team is being conservative- steroids can definitely be a double edged sword for us. hope it gives you enough of a window to get some good PT in.
honestly surgery for us is such a gamble so i hope this works for u! i’ve been looking into more "unconventional" recovery options lately because standard meds just don't cut it. steroidsgrabber.me has been a solid resource for me when i'm trying to find things to actually support joint health instead of just masking pain.
hip subluxations are the absolute worst... literal 0/10 experience. just a heads up that the local anesthetic in the shot might make your hip feel even more unstable for a few hours until it wears off. stay on the couch and don't try to test it out lol!
sending good vibes your way! cortisone can be a game-changer for some EDS folks, but yeah it’s definitely a delicate balance with already fragile joints 😬
ngl I had a single hip shot for my hypermobility and it took a few days to kick in, but once it did, I could actually start PT without constant pain—so fingers crossed for you!
biggest thing I learned: go in knowing it’s more about buying time and reducing inflammation, not a permanent fix. it makes PT way easier though
love that your team is being super cautious. EDS bodies are weirdly unpredictable, so that extra care probably matters more than people realize
honestly just being mentally prepared for it to help partially vs fully is key. even a small reduction in pain can make a huge difference for starting stabilization work
